Hemophilia CANEXTions Summit

Date: November 9th, 2021

Time: 9:00 a.m. – 2:15 p.m.

Location: Online via Zoom


The CANEXTions Summit will be divided into sessions -with speakers or panelists- on the following-

  • Overview of Emerging Novel Therapies and Update on Clinical and Approval Timelines
  • Provider Panel – The Impact of Novel Therapies on the Current Bleeding Disorders Comprehensive Treatment Model
      • Session Content: Comprehensive Care Now and in the Future. What are the optimum models for delivering these new novel therapies? How will these therapies necessitate change in the care delivery model? What is necessary to ensure patients continue to receive a high level of care?
  • Patient Panel – Patient Experience with Access to Care
      • Session Content: What is the patient experience in current care models? What must be maintained and what should be incorporated to ensure quality care? What have been some of the barriers to treatment in general and novel therapies in particular that patients have experienced?
  • Current Gene Therapy Payment Models – An Overview
      • Session Content: Overview of the payment models currently in use to pay for approved gene therapies, as well as a review of other models under consideration by payors.
        Speaker: Kollet Koulianos, MBA, Senior Director of Payor Relations, National Hemophilia Foundation
  • Policy Panel – How are other States and Payors Approaching Coverage and Payment for Novel Therapies?
    • Session Content: Discussion regarding the fiscal and policy considerations for payors in relation to coverage and payment for novel therapies – with a particular focus on gene therapy.


Registration for this event is open now until November 8th!  Please visit: https://hemophiliaca.org/programs/hemophilia-canextions/ for more information or to register.


Nov 09 2021


9:00 am - 2:15 pm


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