Legislative Day

Virtual Advocacy Toolkit

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To find your state legislators, you can go to:  

http://findyourrep.legislature.ca.gov/

Go to Virtual Toolkit Social Media Graphics

For Legislative Office Visits:

 A one page summary of the issues you present during your legislative office visit that you can leave with or email to the legislator/staffer.

 A one page summary of the issues for your reference during your office visit with the legislator/staffer.

A quick elevator speech to explain what are hemophilia / bleeding disorders and how people with bleeding disorders  receive health care.

Some tips for constructing your personal bleeding disorders story.

A few lobbying do’s & don’ts adapted from NHF’s Washington Days.

A sample thank you letter to send as a follow up to your legislative office visit thanking the legislator/staffer for their time and reminding them of the key issues.

  • General Bleeding Disorders

A more in depth description of what are hemophilia / bleeding disorders and how people with bleeding disorders receive health care.

For Email and Snail Mail Advocacy:

Writing Your Legislator

A guide on how to write your legislator (adapted from the National Hemophilia Foundation) with a sample letter template to use for Legislative Day 2022.

For Social Media Advocacy:

Social Media Toolkit 

A guide for how to create your own social media advocacy posts for Legislative Day.

 

 

Social Media Graphics

 

Expand Medi-Cal

Maintain Access to Medi-Cal, CCS & GHPP
Create a Rare Disease Advisory Council
Support Funding for our Rare Disease Allies

Legislative Day Sponsors