Legislative Day

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2024 Legislative Day 

Registration for 2024 Legislative Day is NOW OPEN!

Haga clic aquí para más información acerca de la Visita a la Legislatura (Día Legislativo).

Legislative Day 2024

What:

Protecting patient copay assistance is crucial this year, and we need your help! 

In 2024 we need your voice more than ever! Patient copay assistance is crucial for many families, and we need new laws to protect it! Will you join us?

On Legislative Day, individuals, families and allies of the bleeding disorders community all come together. Unite with us in Sacramento in 2024 to share your story about living with a bleeding disorder! Advocate on issues- such as protecting patient assistance programs- that are important to our community. You will have a chance to speak with Senators, Assemblymembers and their staff! Don’t miss out – we need your voice to make a difference!

When: 
March 13 –  pre-Legislative Day  orientation and training webinar

-March 17  Future Leaders Alumni Reception
Open to all former Future Leaders!  

-March 18 – Legislative Day In person legislative visits with a legislator or staff (8:00 AM – 4:00 PM.) Breakfast and lunch.

Where:

  • Orientation & Training Webinar via Zoom on 3/13 in the evening
  • Future Leaders Alumni ReceptionSacramento (location TBD)
  • Legislative Day in person in Sacramento (subject to change based on public health & safety)
    • Legislative office visits – Capitol Annex Swing Space (1021 “O” Street)
    • Registration and meals  –  Location TBD

.  How:     

  • Pre-Legislative Day orientation and training webinar prepares you for your meetings with elected officials.
  • Registered participants (final day to register is February 9) will be assigned to geographically-aligned teams.  Each team will have a designated leader to coordinate the members during their Practice Session and on the meeting day.  
  • Future Leaders Alumni Reception Open to all former Future Leaders!  You will have the chance to reconnect with other former Future Leaders as well as meet our current year’s Future Leaders at this reception.  Enjoy some appetizers and beverages with other Future Leaders alumni the eve before Legislative Day!  
  • Legislative Day includes several legislative visits with a legislator or staff. 

 

 2023 LEGISLATIVE DAY PHOTOS

Legislative Day Breakfast

 

Legislative Day Lunch and Awards

2023 Leg Day Awardees Trent Garrett (on behalf of Asm. Akilah Weber, M.D.) and Rigo Manzo, HCC Leg Day Awardees

 

Legislative Day Office Meetings

Legislative Day Sponsors