Legislative Day

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2024 Legislative Day 

Registration Deadline for 2024 Legislative Day is EXTENDED to MONDAY, FEBRUARY 12TH!

Haga clic aquí para más información acerca de la Visita a la Legislatura (Día Legislativo).

FLAN Reception


Were you a Future Leader Program participant in the past?  

We would like to invite you to our Future Leader Alumni Reception
on the eve before Legislative Day 2024.  

Reception takes place in Sacramento from 7:30 – 9 PM at
Punch Bowl Social (500 J St., Sacramento, CA 95814).
This venue includes games with a karaoke room, ping pong table, and arcade included!
Appetizers and beverages provided for all attendees.
Start time is 7:30 PM.  
Join us on March 17th to have the chance to reconnect with other former Future Leaders as well as meet our current year’s Future Leaders!

Legislative Day 2024

What:

Protecting patient copay assistance is crucial this year, and we need your help! 

In 2024 we need your voice more than ever! Patient copay assistance is crucial for many families, and we need new laws to protect it! Will you join us?

On Legislative Day, individuals, families and allies of the bleeding disorders community all come together. Unite with us in Sacramento in 2024 to share your story about living with a bleeding disorder! Advocate on issues- such as protecting patient assistance programs- that are important to our community. You will have a chance to speak with Senators, Assemblymembers and their staff! Don’t miss out – we need your voice to make a difference!

When: 
March 13 –  pre-Legislative Day  orientation and training webinar

-March 17  Future Leaders Alumni Reception
Open to all former Future Leaders!  

-March 18 – Legislative Day In person legislative visits with a legislator or staff (8:00 AM – 4:00 PM.) Breakfast and lunch.

Where:

  • Orientation & Training Webinar via Zoom on 3/13 in the evening
  • Future Leaders Alumni ReceptionSacramento (location TBD)
  • Legislative Day in person in Sacramento (subject to change based on public health & safety)
    • Legislative office visits – Capitol Annex Swing Space (1021 “O” Street)
    • Registration and meals  –  Secretary of State Building, Multipurpose Conference Room (1500 11th St, Sacramento, CA 95814)

.  How:     

  • Pre-Legislative Day orientation and training webinar prepares you for your meetings with elected officials.
  • Registered participants (final day to register is February 12) will be assigned to geographically-aligned teams.  Each team will have a designated leader to coordinate the members during their Practice Session and on the meeting day.  
  • Future Leaders Alumni Reception Open to all former Future Leaders!  You will have the chance to reconnect with other former Future Leaders as well as meet our current year’s Future Leaders at this reception.  Enjoy some appetizers and beverages with other Future Leaders alumni the eve before Legislative Day!  Held at Sacramento’s Punch Bowl Social, which has a karaoke room, ping pong, and arcade included in the event’s activities!
    RSVP Here Today!
  • Legislative Day includes several legislative visits with a legislator or staff. 

 

Español

¡Acompáñenos en Sacramento para la Visita a la Legislatura de 2024!

Este evento importante de defensa brinda una oportunidad para que las personas, las familias y los defensores de la comunidad de desórdenes sanguíneos se reúnan y compartan una voz unida. Los asistentes aprenderán sobre los problemas clave que afectan a las personas con desórdenes sanguíneos.
  • EL 13 DE MARZO a través de una presentación web con traducción al ESPAÑOL y la oportunidad de hacer preguntas en vivo.
  • EL 18 DE MARZO, todos se juntarán EN SACRAMENTO. 
Especialmente para las personas de habla hispana:  Formarán un grupo para reunirse con los senadores, asambleístas y su personal de habla hispana. Durante estas reuniones, usted puede brindarles información sobre los desórdenes sanguíneos y los problemas que enfrenta la comunidad.

Cuándo: Seminario web preparatorio (13 de marzo, por la noche)
Visitas legislativas con senadores y asambleístas clave, o su personal (18 de marzo; 8:30 am – 4:00 pm)
              El desayuno y el almuerzo incluidos

Dónde: Las reuniones se llevan a cabo en Capitol Annex Swing Space (1021 “O” Street, Sacramento). Habrá mucha caminata, así que use zapatos cómodos para caminar. Ubicación del desayuno es Secretary of State Building Multipurpose Room (1500 11th Street, Sacramento).

¡Este es un momento crucial para abogar por la protección de los programas de ayuda al paciente, como la asistencia con copagos! ¡Necesitamos su voz!

 

Regístrese ahora: tenga en cuenta que usted es responsable de reservar su propio viaje hacia y desde el evento, pero la asistencia de viaje está disponible. 
¡No espere!
La fecha límite para registrarse es el 9 de febrero. 

Para más información, comuníquese con Andrea en info@hemophiliaca.org.

 2023 LEGISLATIVE DAY PHOTOS

Legislative Day Breakfast

 

Legislative Day Lunch and Awards

2023 Leg Day Awardees Trent Garrett (on behalf of Asm. Akilah Weber, M.D.) and Rigo Manzo, HCC Leg Day Awardees

 

Legislative Day Office Meetings

Legislative Day Sponsors