Hemophilia CANEXTions: California Novel Hemophilia Therapies Access Summit

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What is Hemophilia CANEXTions?


Decision makers come together for this dynamic Summit with discussions regarding novel and emerging therapies for the treatment of bleeding disorders and their impact on the healthcare delivery system. The goal of this event is to educate stakeholders, spark dialogue about implications for California and identify potential gaps in access to novel therapies.

Theme for 2021:  “Taking a Broader View: The impact of novel therapies on treatment of bleeding disorders and access to care”

Date:  November 9, 2021
Time: 9:00 AM – 2:15 PM  (See agenda for individual session times)
Venue: Virtual via Zoom

Did you miss last year’s CANEXTions?
You can find a quick one page executive summary of the topics from 2020 below.
Executive Summary of 2020 CANEXTions

Registration is NOW OPEN!

You can watch a clip from last year’s CANEXTions Summit about why long-term follow up is important for recipients of gene therapy  below-

Who is the Audience?

  • Policy Makers
  • Public and Private Health Payers
  • Health/Hospital Systems
  • Hemophilia Treatment Centers and other specialty care centers
  • Clinicians
  • Patients & Patient Advocates
  • Novel Therapy Innovators

Why is HCC Hosting This Event?

The Hemophilia Council of California is a 501(c)3 nonprofit patient advocacy organization representing all Californians with bleeding disorders. For more than 30 years, HCC has pursued its mission to improve access to care and treatment options to advance the quality of life for people with bleeding disorders such as Hemophilia through advocacy, education, and outreach in collaboration with its founding member organizations. Our vision is a world with open access to quality innovative care and choice of treatment.