Lynne Kinst was the Executive Director of Central California Hemophilia Foundation (CCHF) from July 2017 until December 2019. As Executive Director of CCHF she implemented many new programs and increased revenue by 100%. Previously she worked for California State Board of Equalization Board Members George Runner and Diane Harkey, and the Taxpayer’s Rights Advocate. As a tax services specialist Lynne worked on improving the taxpayer experience, assisted taxpayers with their concerns, coordinated educational events and worked on legislative and tax policy.

In addition, Lynne spent eight years as director of administration with a non-profit organization now known as Capitol Commission, where she supported ministry leadership in establishing ministries, partner development, fundraising, event coordination and human resources. Prior to working at the non-profit she had four years of political experience working for state elected officials in a variety of capacities.

Born and raised in Sacramento, Lynne attended the University of California, Davis earning a bachelor’s degree in political science, with minors in human development and religious studies. Lynne also has a master of arts in biblical counseling from The Master’s University. 

Her father, Jim Carey, was an active member of the CCHF Board, serving as treasurer since the chapter’s founding until his death in 1994. CCHF’s Jim Carey Scholarship is named in his honor. Previously, Lynne served on both the CCHF and Hemophilia Council of California Boards of Directors. Lynne is herself a carrier of Hemophilia. She and her husband David live in Rocklin, CA with their son Zach, and daughter Ashley.

Lauren D. Hay has over a decade of professional experience in the biopharmaceutical industry, spanning both consulting and private equity roles.  Lauren is currently a Managing Director at Hay Advisory Corporation, a boutique life sciences consulting firm based in San Diego.  Prior to founding Hay Advisory Corp, Lauren served as the VP and then Director of Investment Analysis & Research at DRI Capital, a Toronto-based $1B private equity firm focused on pharmaceutical royalty monetization.

Lauren is passionate about patient advocacy and education, particularly in rare diseases such as hemophilia, and she has helped support the development and commercialization of non-factor therapies in hemophilia.  Lauren earned her BA in Human Biology with Phi Beta Kappa honors at Stanford University, and she completed her MBA with Honors in Healthcare Management at The Wharton School.

Stephanie’s involvement with the hemophilia community began in 1987 when her son was diagnosed with severe Hemophilia A. In order to deal with her son’s medical condition, Stephanie quickly learned as much as she could about hemophilia and became an advocate for her son’s care. She also served as a volunteer and Board member for her local hemophilia foundation. With a Bachelor’s Degree in psychology from Whittier College and a Master’s Degree in Marriage, Family and Child Counseling (MFCC) from Pacific Oaks College, Stephanie used her professional skills to deliver programs and services to the hemophilia community at the chapter, regional and treatment center levels. Her volunteer work with local, state and national hemophilia organizations, continued as well. Stephanie
retired from the UC Davis Hemostasis and Thrombosis Center in July 2020, after more than 30 years of working with the bleeding disorders community. Her passion for advocacy has not been diminished by retirement and she vows to continue her involvement as a volunteer with HCC for many years to come.

When Michael Bradley, HCC Board President, mentioned to Tony Carvalho that he was looking for someone with financial experience to help out on the Board, Tony was pleased to volunteer as a board member.  Tony enjoys giving back to people who need it, so he supports the HCC cause of providing people with bleeding disorders access to education and advocacy skills.  As a CFO, Tony brings a different perspective and financial insight into how HCC can be run better to make the organization stronger.  Tony uses his unique financial perspective to figure out how he can best help the Hemophilia Council of California.  

Ryan Faden is a seasoned professional in health care policy and government affairs with over two decades of experience of increasing responsibility.  Most recently, Ryan was the state policy lead for Gilead Sciences.  His work there included advocating for access to treatment for people living with HIV and Hepatitis C.

Prior to that, Ryan worked for nearly 15 years in state government affairs for CSL Behring and the Plasma Protein Therapeutics Association.  In those roles, he worked closely with bleeding disorders advocates across the country to help ensure access to hemophilia therapies in state health programs.  Most notably, Ryan was a key voice in the multi-year effort to pass AB 389 in California in 2012. (“Standards of Service for Providers of Blood Clotting Products for Home Use Act”) Ryan’s prior Board experience also includes serving as Board Chair for the Carden Conejo School Advisory Board.

Ryan holds a JD from Seton Hall University School of Law, a Masters of Public Health from UCLA, and BA in History from UCLA.

Cindy had worked at National Cornerstone for nine years as Client Care Coordinator.  After it closed its doors in 2018, she began work as a Specialty Pharmacy Account Manager for Brothers Healthcare, which is where she continues to work today.  For Cindy, it was her son, Eric, and his hemophilia diagnosis 16 years ago that started her journey within the hemophilia community and has led Cindy to where she is today.  Her journey began as a family affair after having learned of Eric’s diagnosis, participating in every event available to them, including attending family camp, which truly helped their family and especially Eric grow stronger together.  Early on in their involvement within the community, Cindy became very aware of the need for additional support for our Latino community, specifically with providing easy access to information and resources in Spanish.  This realization developed her motivation to become an educator and a resource for support in the Spanish speaking community.  In this effort, Cindy became a volunteer with HFNC for 14 years.  Her experience has ignited a desire to walk through every open door and accept every challenge that allows her to continue supporting this community in every way.  Cindy is honored and proud to serve on the board of HCC! 

Elaine has been caring for hematology oncology patients for over 15 years. She received her nursing education from the University of San Francisco and Dominican University of California.

Her areas of clinical focus include, hemostasis thrombosis, hemoglobinopathies, and marrow failure. She has academic healthcare leadership experience and is knowledgeable in hospital, university, and 340B operations.

She is currently working in biotech  overseeing clinical education for bleeding disorder patients in the CA-HI region.

 Previously, she served as the Program Manager for the Stanford Hematology Program and held roles in the Nursing Workgroup for the Western States Regional Hemophilia Network (WSRHN) and the National Hemophilia Federation.

Nate lives in the Fair Oaks area of California with his wife Melissa and their two boys Tyler and Luca. After graduating UCLA, Nate has worked in a variety of roles in the pharmaceutical and biotech industries and has been involved in the Hemophilia community since 2008.  As a volunteer, Nate has completed 9 HCC Coastal Bike Rides and, as you may imagine, is an avid cyclist.  When not working he can usually be found riding his bike with his eldest son Tyler or playing baseball with Luca.