Improving the quality of life and advocating for all Californians with bleeding disorders
Our Mission: To improve access to care and treatment options in order to advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with its founding member organizations
Our Vision: Open access to quality innovative care and choice of treatment for all people with bleeding disorders.
Hemophilia CANEXTions Summit
November 17, 2020
HCC’s 2nd Annual Hemophilia CANEXTions Summit is on November 17, 2020.
Gene therapies represent an exciting future for an increasing number of rare, expensive and difficult-to-treat medical conditions. Gene therapy for hemophilia is at the forefront of this wave and will be a proving ground for new policies and financing models.
The Hemophilia CANEXTions Summit is for policy makers, public and private health plans, specialty health centers, advocates from the patient community, health systems and healthcare providers, and novel therapy innovators to examine gene therapy and its potential impact on California’s health care system, as well as address potential barriers to patient access to gene therapy.
Once again California has begun our yearly fire season. Combine that with power shut offs, heat waves and the ongoing pandemic, and many people across the state- including those in the bleeding disorders community- may find themselves faced with a disaster...
Today we celebrate the 30th anniversary of the Ryan White Comprehensive AIDS Resources Emergency (CARE) Act. The act was signed into law on August 18, 1990, and created a federal program to provide people with HIV the care and treatment they need. The Ryan White...
CSL Behring and Ferring Pharmaceuticals have announced additional information about a recent recall of lots of Stimate® that was originally issued July 21, 2020. Stimate® Nasal Spray is owned and manufactured by Ferring Pharmaceuticals Inc., and is distributed and...