Improving the quality of life and advocating for all Californians with bleeding disorders
Our Mission: To improve access to care and treatment options in order to advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with its founding member organizations
Our Vision: Open access to quality innovative care and choice of treatment for all people with bleeding disorders.
Legislative Day 2024
March 18, 2024
This event will be held in Sacramento 3/18 with a one hour Zoom preparation webinar for Legislative Day on 3/13 at 6 PM.
Join other members of the bleeding disorders community from across the state! Meet your legislators in person and tell them your story!
Help us advocate to protect patient copay assistance, CCS and GHPP!
Deadline to register is Friday, February 9th!
Health Care Access Forum
February 29, 2024
10:00 AM – 12:00 PM
This hybrid in person/virtual event will be held in Sacramento at the Capitol Event Center (Capitol Event Center (1020 11th St, Sacramento, CA 95814, 2nd Floor) and via Zoom.
Our first Forum of 2024! There are many new changes and updates at the State policy level and legislative level this year, so please join us to hear the latest and stay informed!
Registration and Networking begin at 9:00 AM in Sacramento or 9:15 AM online. Lunch follows the event at 12:00 PM.
CA Rare Disease Access Coalition
February 29, 2024
1:00 PM- 4:00 PM
This hybrid in person/virtual event will be held in Sacramento at the Capitol Event Center (Capitol Event Center (1020 11th St, Sacramento, CA 95814, 2nd Floor) and via Zoom. Our first ever meeting of the newly-formed California Rare Disease Access Coalition!
Lunch and registration precedes the event at 12:15 – 1:00 PM.
Future Leaders Program
March 13 & 16 – 19, 2024
This event will be held in Sacramento 3/16 – 3/19 with a one hour Zoom preparation webinar for Legislative Day on 3/13 at 6 PM. Teens in high school with a bleeding disorder or sibling or parent with a bleeding disorder are encouraged to apply!
Application Deadline Has Passed for 2024.
Click Here to register for Legislative Day on March 18th!
Today, over 80 national and California-based advocacy organizations that make up the All Copays Count in California Coalition applauded the introduction of Assembly Bill 2180, state legislation that protects chronically or terminally ill patient access to prescription medications. Introduced by Assemblymember Akilah Weber, M.D. (D-79), AB 2180 would ensure that California health insurance plans and pharmacy benefit mangers (PBMs) count the value of copay assistance from patient assistance programs (PAPs) toward a patient’s deductible and out-of-pocket maximum expenses, thereby banning the growing practice of copay accumulators used by health plans and PBMs to deny patient cost-sharing assistance.
US Department of Health and Human Services dropped its appeal of a US District Court ruling that in effect requires insurers to count copay assistance towards patient cost-sharing.
Aviso Médico Importante: Retirada voluntaria de Takeda: alerta sobre etiquetas mal impresas para VONVENDI®
[Publicado de NBDF] 26 de enero, 2024 Takeda anunció hoy que está llevando a cabo un retiro voluntario del mercado para dos lotes de productos de 650 UI VONVENDI® [factor von Willebrand] en los EE. UU. Takeda dijo que el retiro se está llevando a cabo por precaución...