2016 California Coastal Ride For Hemophilia

2014 california coastal ride riders

2016 marks the 15th year of the California Coastal Ride for hemophilia and other bleeding disorders. The CaliforniaCoastal Ride for Hemophilia is a fitness challenge benefiting all four California Hemophilia Chapters & the Hemophilia Council of California. Cycle over 500 miles from San Francisco to San Diego in one week for hemophilia, von Willebrand Disease and other bleeding disorders!

The ride begins with a kick-off dinner on Saturday, August 13 in San Francisco and concludes on Saturday, August 20 in San Diego. Registered riders embark on a seven-day journey along California’s majestic Highway 1 for an experience like no other. From the rugged mountains of the north to the bustling beach cities of the south, you will see it all!This ride is truly a coastal ride adventure where you will test your ability and challenge yourself each day. You will ride through the coastal towns of Santa Cruz, Big Sur, Monterey, San Simeon, Pismo Beach, Santa Barbara, and Dana Point.

The Hemophilia Council of California (HCC) is a collaboration of the four hemophilia chapters serving California. HCC’s mission is to support the four California hemophilia chapters and improve the quality of life of people with bleeding disorders. HCC coordinates the advocacy concerns of chapters and individuals with bleeding disorders, runs leadership programs and organizes the annual legislative day to give a voice in the state Capitol.

 

Video

Blood Roots

The Hemophilia Council of California’s (HCC) partnership with the CDC Region IX/HRSA Western States Regional Hemophilia Network has been an essential component of our state level patient advocacy efforts. The strength of the HCC’s position on access to established, quality, state-of-the-art treatment and care for rare bleeding disorders within the HTC network is recognized by numerous departments and policymakers in Sacramento.

We are pleased to showcase the ‘Blood Roots’ documentary video on our website, to enhance the bleeding disorder community’s awareness and appreciation of the history behind this expert network of comprehensive health care services that have defined a higher level quality of life for decades. The value and opportunity for patients to collaborate with dedicated health care professionals throughout a lifetime is beyond measure. The HCC understands the emergence of the 340B program as an expanded source of funding for the HTC network, after initial grant funds were no longer sustainable. In addition, patient choice in sourcing their factor products within the parameters of their health care plan coverage is an inherent right and responsibility the HCC strongly supports.