About Us

History & Mission

The four California hemophilia organizations formed the Hemophilia Council of California (HCC) in the 1970’s, and in 1989, we incorporated as a 501(c)3 nonprofit organization, to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders in California.

Twenty-seven years later, HCC continues to pursue its mission to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with our founding organizations.

Tax ID # 68-0182998


The HCC Team

Jillian Hacker, Executive Director

Hacker began her work with HCC in 2004, assisting  with  lobby days and policy issues. As Executive Director, Hacker executes an annual strategic fund development plan, ensuring HCC’s fiscal integrity and financial sustainability. She maintains collaborative working relationships with stakeholders, including chapters, advocacy groups, service providers, community members, the National Hemophilia Foundation and the Hemophilia Federation of America. She advances HCC’s mission, oversees advocacy efforts and grows HCC’s programs.

Prior to joining HCC, Hacker operated her own consulting firm for 13 years, providing expertise in non-profit management, stakeholder engagement, fundraising, advocacy and media relations. She has worked with local and national organizations focused on health issues and patient safety, including autism, children’s health, digestive diseases and other chronic illnesses. Hacker has mobilized large-scale support for global animal welfare and wildlife conservation organizations, managing efforts to enact legislation, grow public awareness, build media exposure, organize events and forge strategic partnerships among elected officials, stakeholders and interest groups.

Hacker holds a Masters in Public Administration and a Bachelor of Arts in Political Science from the University of California, Santa Barbara. Hacker serves on the board of the Sacramento Area Animal Coalition and the Communications Committee for Metro Edge.

Heidi ScanlanHeidi Scanlan, Executive Administrator

Heidi has Von Willebrand Disease, as does her oldest daughter, mother and grandmother. Because of this, she is very passionate about spreading awareness of the disease. She home schooled seven children, which has taught her how to be a great advocate. For the last thirty years, she has been running her bookkeeping and tax business. She came onto the Council in 2010, perfecting her advocacy skills.


HCC Board

Officers

Ben Martin, President
A former journalist, Ben Martin has a bachelors degree in Public Relations and joined HCC’s Board of Directors in 2015 after ending a three-year stint on the Board of the Hemophilia Foundation of Northern California (HFNC). He also serves as Board President for Disabled Adventure Outfitters and is a co-director of Camp Hemotion, HFNC’s annual summer camp. He was diagnosed with mild hemophilia A at age 10 and has been involved in the community since he first attended summer camp as a teenager. He has helped run programs in the bleeding disorders community all over the west coast, and has been a presenter at NHF’s Annual Meeting and the annual NACCHO conference for summer camp directors.

picture of Randy CurtisRandall Curtis, Past President
Randy has a bachelor of science in genetics and an MBA in computer information systems. Throughout his 33 year career with the State of California in Public Health and Industrial Relations, he as always worked on data collection systems for hemophilia in his spare time. Now that he is retired, he is working in the following capacities: Past President, Hemophilia Council of California – statewide advocacy for bleeding disorders, Hemophilia Utilization Group Studies (HUGS) – burden of illness studies in bleeding disorders, Patient Reported Outcomes, Burdens and Experiences (PROBE) – data collection and hemophilia advocacy training for developing countries, American Thrombosis & Hemostasis Network: Privacy, Security and Data Access Committee, National Hemophilia Foundation: Annual Meeting Planning Committee, Center for Inherited Bleeding Disorders: Board of Directors, National Panel on Practice Guidelines for Hemophilia Management, National Hemophilia Program Coordinating Center (NHPCC) Advisory Committee, Pacific Sickle Cell Regional Collaborative Policy Working Group.

Donald DDonald Douglas, Secretary
Ziggy, aka. Donald, has been working with the Bleeding Disorder families and youth/camp programs across the west coast for 15 years now, as well as assisting the community for over 24 years as a whole. He has attended/facilitated 100+ camp/family programs in the last 15 years in AZ, CA, NV, WA, OR. He has participated in all formats of programming from youth leadership, family camp, to kid’s camps and even adventure camps. He has served as volunteer, facilitator, councilor and youth programs coordinator, Activities Director, and Camp Director in many programs across the west. Ziggy was also part of the Ca. Leg., Leadership Youth Training in Sacramento for 5 years w/ Mr. Bias, and is again currently a big part of our Future Leaders Team. He has also served on foundation boards and associate boards in the west coast. He has assisted with facilitation of National conference youth programs at NOW and HFA conferences, and been a member of the NACCHO planning committee/speaker for 12 years. He is dedicated to the MISSION, education and success of the foundations and their support programs, and has continually attended and offered support in any way possible to this region as well as many others across the west and the nation.

Kenneth (Kenn) Horowitz, PharmD Treasurer
Dr. Horowitz is a graduate of UC San Francisco School of Pharmacy (1966). He completed an ASHP accredited hospital pharmacy residency in the U.S. Public Health Service (1966-7) and spent two years in Indian Health Service in Rocky Boy, Montana. He has extensive experience in all areas of pharmacy practice including Acute Care, Nursing Home, Consulting, Sterile Preparations and Ambulatory Care as staff pharmacist and in management positions. He supervised dispensing and clinical functions for clinics, infusion center, surgery center, pain center and other ambulatory based services. He has taught Pharmacology to Nurses and Paramedics. Before retiring, he was a hemophilia specialist with Hemophilia Health Service. Prior to that, he was the Ambulatory Care Pharmacy supervisor for Cedars-Sinai Medical Center. He is a past president, past member of the Board of Directors and Past Treasurer of the California Society of Health-System Pharmacists (CSHP) and has served on numerous committees, councils and boards of Health-System and Community Pharmacist organizations. He was Pharmacist of the year for Southern California Society of Health-System Pharmacists in 2010 and received the CSHP Distinguished Service Award in 2015. He is semi- retired and works part time as a special projects Pharmacist at Torrance Memorial Medical Center. Dr. Horowitz is married and has 4 children and 4 grandchildren and resides with his wife Selma in Hermosa Beach, California.

Voting Members

Michael Bradley
Michael has 25+ years of experience at multiple levels in the biopharmaceutical industry with extensive strategic and tactical experience in launching products for rare, chronic diseases. He also has 12+ years working as a clinical laboratory scientist with a primary focus on hematologic disorders. Michael spent over 24 years at Baxter/Baxalta/Shire. In his most recent role he was Vice President of US Market Readiness.The role of Market Readiness centers on incorporating market access and pricing strategies/tactics into current and future marketing and launch execution plans. He has dedicated his career to making sure that companies continue to be the leader in patient focused access to rare, innovative therapies. He strives to make access an integral part of all business planning and to advance and coordinate strategies that have a positive impact on patients and customers. Michael has been involved in more that 15 new and life-cycle product launches in the areas of hematology, immunology, biosurgery and COPD. Michael has now transitioned to a consulting role at The Access Group. In his current role Michael works with organizations to create focused strategic and tactical plans in the areas of market access, managed markets, reimbursement, HEOR, advocacy, public policy, pricing and value propositions. The overall goal is to facilitate the coordination of products, programs and resources to enhance patient access. Additional areas of expertise include managed markets, reimbursement, HEOR, advocacy, public policy, pricing and product value propositions. Michael is a licensed Clinical Laboratory Scientist and has an MBA in Marketing Management.

Raeann Fea
Raeann has been heavily involved with the bleeding disorder community since she was diagnosed with Von Willebrands in 2008. She attended camp for the first time just months after being diagnosed, and became a camp counselor and mentor with the Hemophilia Association of San Diego County shortly thereafter. After her first year of attending, she knew the Hemophilia community would quickly become her second family. She started her work with the council through attending the Future Leaders program, immediately fell in love with what the council stood for, and wanted to become more involved. When Raeann reached the age cap last year, she knew she wanted to do more and joining the board as a member was her next step. In the coming years, Raeann looks forward to working side by side with all of the committee members, and having a positive impact on individuals and families affected by bleeding disorders.

David Hubbert
David is a severe hemophilia type A patient currently studying breast cancer at UC Davis Medical Center. His goal is to live life to the fullest and show every hemo brother and sister that there is no limit to what they can do. He enjoys speaking to everyone about hemophilia and what can be done, now and in the future, to make lives better. When he is not in the lab or talking to people, he enjoys working on and riding his motorcycle, snowboarding, and generally pushing the boundaries of his physical and mental limits.

Bobby Wiseman
Bobby is a Bay Native that was born and raised and San Francisco.  Since an early age he has been active with the Hemophilia Foundation of Northern California in a variety of capacities.  In the 1990’s he served on the Board of Directors for HFNC as well as the Chair, Summer Camp Planning, a position which he currently holds.  He is also the Camp Director the HFNC servicing children and youth from both Northern and Central California.  With HFNC he has served as the Outreach Coordinator for the African American community, Chair of Youth Activities and a number of other positions within the Foundation. On a national level, he has worked both for and with the National Hemophilia Foundation and Hemophilia Federation of American.  With the National Hemophilia Foundation, he served in the paid capacity of Manager of Special Projects assisting with the realignment of various chapter organizations into one organization under the guidance of NHF.  Prior to this position, he was a coordinator for the Youth and Adolescent Program of NHF which convened each year at the annual meeting.  Moreover, he served as a MANN (Men’s Advocacy Network of NHF) Coordinator for both older men and young adult me in the United States.  He spoke on behalf of NHF with Jocelyn Elders, former Surgeon General, on effective, grassroots program which directly benefit the bleeding disorders population.  With the HFA he serves as a Blood Brotherhood Coordinator and group member. He has spoken in the past at both NHF and HFA on effectively managing the co-factors associated with a bleeding disorder.  He has strong connections with many of the key staff positions of both HFA and NHF from his time as a community advocate and supported.  Val Bias, CEO NHF, is both a close mentor and friend.  He has close ties with many in the New York offices of NHF and the Washington DC offices of HFA. As a strong, solid community member, he has connections with bleeding disorders communities across both the United States and the world.  From his work with the World Federation of Hemophilia as Youth Congress Chair, he has met many people with bleeding disorders from across the world.  Along with two other blood brothers, he co-founded an international non-profit to bring summer camp programs to developing countries.  At present he is working with the Heamophilia Foundation of Nigeria to produce its third annual camping program in summer 2015.  In the United States he has spoken at many chapter events on the benefit of early and appropriate treatment, program which benefit the whole family, as well as programs which benefit the transitional age youth and young adults.  He is an active member with the NACCHO conference serving on its planning body for the past nine years.  He has both presented key notes and breakout sessions on relevant time challenges and success to the bleeding disorders community. As a community member working in Industry, he balances his various “hats” and responsibilities quite well. He is an advocate for the Community on various legislative issues and matters.  He speaks with new families on issues which affect them and provides appropriate resources.  He works with the local Hemophilia Treatment Centers on programs and services which benefit the teen and transition age college youth.  He is an active member of many online social media platforms speaking to thousands of community members across the nation.  He has strong ties with the hemophilia organizations in Arizona, California, Oregon, Washington, Alaska, Puerto Rico, New York, Georgia, Alabama, and Hawaii.

Cathy Marquez Velasco

 

 

 

 

 

Sean Pentz

 

 

 

 

Adam Wilmers
Originally from Michigan, Adam and his wife Catalina moved to San Francisco in 2015.  He works as an HR Business Partner in the technology industry, and holds a Masters Degrees in Counseling and Human Resources and Labor Relations from Michigan State University, and an undergraduate degree in English, Psychology and Secondary Education from the University of Michigan.  In their free time, Adam and Catalina enjoying exploring San Francisco and traveling.  


Gio Pernudi

Rebecca Buchmiller
Renatto Medranda


HCC Member Chapters

Hemophilia Foundation of Northern California
Central California Hemophilia Foundation
Hemophilia Foundation of Southern California
Hemophilia Association of San Diego County

Contact Us

info@hemophiliaca.org

(916) 572-7771

Hotline – For Anonymous Assistance with Treatment, Insurance or Access Concerns

(626) 872-5663

info@hemophiliaca.org