History & Mission
The four California hemophilia organizations formed the Hemophilia Council of California (HCC) in the 1970’s, and in 1989, we incorporated as a 501(c)3 nonprofit organization, to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders in California.
Twenty-seven years later, HCC continues to pursue its mission to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with our founding organizations.
Tax ID # 68-0182998
The HCC Team
Heidi Scanlan, Executive Administrator
Heidi has Von Willebrand Disease, as does her oldest daughter, mother, and grandmother. Because of this, she is very passionate about spreading awareness of the disease. She home schooled seven children, which has taught her how to be a great advocate. For the last thirty years, she has been running her bookkeeping and tax business. She came onto the Council in 2010, perfecting her advocacy skills.
Jillian Hacker, Executive Director
Hacker began her work with HCC in 2004, assisting with lobby days and policy issues. As Executive Director, Hacker executes an annual strategic fund development plan, ensuring HCC’s fiscal integrity and financial sustainability. In addition, she maintains collaborative working relationships with stakeholders, including chapters, advocacy groups, service providers, community members, the National Hemophilia Foundation and the Hemophilia Federation of America. She oversees advocacy efforts, advances HCC’s programs and services, gathers and maintains knowledge of significant developments and trends in the bleeding disorder field, and deepens and refines communications.
Prior to joining HCC, Hacker operated her own consulting firm for 13 years, providing expertise in non-profit management, stakeholder engagement, fundraising, grassroots advocacy and media relations.
She has worked with a wide range of local and national organizations focused on wellness, patient safety and health issues, including autism, children’s health, digestive diseases and other chronic illnesses. In addition to her healthcare work, Hacker has mobilized large-scale support for various global animal welfare and wildlife conservation organizations. On behalf of these organizations, she managed efforts to enact legislation, raise funds, grow public awareness, build media exposure, organize events and forge strategic partnerships among elected officials, stakeholders, the media and interest groups.
Hacker holds a Masters in Public Administration and a Bachelor of Arts in Political Science from the University of California, Santa Barbara. Hacker resides in West Sacramento and serves on the board of the Sacramento Area Animal Coalition, the Communications Committee for Metro Edge and the Marketing Committee for the SPCA.
Grace Vega, Hotline Operator
Randall Curtis, Chair
Mr. Curtis has a bachelor’s degree in Genetics, an MBA in Computer Information Systems and has severe hemophilia. He has been developing hemophilia database systems since 1984 and spent 9 years on the Universal Data Collection Working Group at the CDC. He has been working on the Hemophilia Utilization Group Study (HUGS) since 1993 and has presented data at national and international meetings. Randall serves on a number of non-profit boards and is currently the Chief Enterprise Architect for the California Department of Industrial Relations.
Donald Douglas, Secretary
ZIGGY, aka. Donald Douglas, has been working with the Bleeding Disorder families and youth/camp programs across the west coast for 15 years now, as well as assisting the community for over 24 years as a whole. He has attended/facilitated 100+ camp/family programs in the last 15 years in AZ, CA, NV, WA, OR. He has participated in all formats of programming from youth leadership, family camp, to kid’s camps and even adventure camps. He has served as volunteer, facilitator, councilor and youth programs coordinator, Activities Director, and Camp Director in many programs across the west. Ziggy was also part of the Ca. Leg., Leadership Youth Training in Sacramento for 5 years w/ Mr. Bias, and is again currently a big part of our Future Leaders Team. He has also served on foundation boards and associate boards in the west coast. He has assisted with facilitation of National conference youth programs at NOW and HFA conferences, and been a member of the NACCHO planning committee/speaker for 12 years. He is dedicated to the MISSION, education and success of the foundations and their support programs, and has continually attended and offered support in any way possible to this region as well as many others across the west and the nation.
Michelle Gilmore, Vice Chair
Edmund Merino, Treasurer
HCC Member Chapters