2016 marks the 15th year of the California Coastal Ride for hemophilia and other bleeding disorders. The CaliforniaCoastal Ride for Hemophilia is a fitness challenge benefiting all four California Hemophilia Chapters & the Hemophilia Council of California. Cycle over 500 miles from … Continue reading
The Hemophilia Council of California’s (HCC) partnership with the CDC Region IX/HRSA Western States Regional Hemophilia Network has been an essential component of our state level patient advocacy efforts. The strength of the HCC’s position on access to established, quality, state-of-the-art treatment and care for rare bleeding disorders within the HTC network is recognized by numerous departments and policymakers in Sacramento.
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We are pleased to showcase the ‘Blood Roots’ documentary video on our website, to enhance the bleeding disorder community’s awareness and appreciation of the history behind this expert network of comprehensive health care services that have defined a higher level quality of life for decades. The value and opportunity for patients to collaborate with dedicated health care professionals throughout a lifetime is beyond measure. The HCC understands the emergence of the 340B program as an expanded source of funding for the HTC network, after initial grant funds were no longer sustainable. In addition, patient choice in sourcing their factor products within the parameters of their health care plan coverage is an inherent right and responsibility the HCC strongly supports.
Covered California’s mission is to increase the number of Californians with health insurance, improve the quality of health care for all of us, reduce health care coverage costs and make sure California’s diverse population has fair and equal access to … Continue reading
May 9-11, 2016 The Future Leader Program is a three-day program designed to teach young people how to advocate for themselves and their community. This program is open to men and women with bleeding disorders ages 14-22 and their siblings. … Continue reading
This is a friendly reminder for patients to alert the Genetically Handicapped Persons Program (GHPP) 60 days prior to your 21st birthday that you would like to apply for the GHPP to ensure seamless, uninterrupted coverage for your hemophilia treatment … Continue reading
April 17, 2016 On World Hemophilia Day 2016, inspire others with your story of living with or treating a bleeding disorder and show your commitment to achieving treatment for all. This year’s theme celebrates supporting positive change for people with … Continue reading