About Us

History & Mission

The four California hemophilia organizations formed the Hemophilia Council of California (HCC) in the 1970’s, and in 1989, we incorporated as a 501(c)3 nonprofit organization, to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders in California.

Twenty-seven years later, HCC continues to pursue its mission to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with our founding organizations.

Tax ID # 68-0182998

The HCC Team

Jillian Hacker, Executive Director

Hacker began her work with HCC in 2004, assisting  with  lobby days and policy issues. As Executive Director, Hacker executes an annual strategic fund development plan, ensuring HCC’s fiscal integrity and financial sustainability. She maintains collaborative working relationships with stakeholders, including chapters, advocacy groups, service providers, community members, the National Hemophilia Foundation and the Hemophilia Federation of America. She advances HCC’s mission, oversees advocacy efforts and grows HCC’s programs.

Prior to joining HCC, Hacker operated her own consulting firm for 13 years, providing expertise in non-profit management, stakeholder engagement, fundraising, advocacy and media relations. She has worked with local and national organizations focused on health issues and patient safety, including autism, children’s health, digestive diseases and other chronic illnesses. Hacker has mobilized large-scale support for global animal welfare and wildlife conservation organizations, managing efforts to enact legislation, grow public awareness, build media exposure, organize events and forge strategic partnerships among elected officials, stakeholders and interest groups.

Hacker holds a Masters in Public Administration and a Bachelor of Arts in Political Science from the University of California, Santa Barbara. Hacker serves on the board of the Sacramento Area Animal Coalition and the Communications Committee for Metro Edge.

Heidi ScanlanHeidi Scanlan, Executive Administrator

Heidi has Von Willebrand Disease, as does her oldest daughter, mother and grandmother. Because of this, she is very passionate about spreading awareness of the disease. She home schooled seven children, which has taught her how to be a great advocate. For the last thirty years, she has been running her bookkeeping and tax business. She came onto the Council in 2010, perfecting her advocacy skills.

Grace Vega, Hotline Operator

HCC Board


picture of Randy CurtisRandall Curtis, Chair

Mr. Curtis has a bachelor’s degree in Genetics, an MBA in Computer Information Systems and has severe hemophilia. He has been developing hemophilia database systems since 1984 and spent 9 years on the Universal Data Collection Working Group at the CDC. He has been working on the Hemophilia Utilization Group Study (HUGS) since 1993 and has presented data at national and international meetings. Randall serves on a number of non-profit boards and is currently the Chief Enterprise Architect for the California Department of Industrial Relations.

Donald DDonald Douglas, Secretary

ZIGGY, aka. Donald Douglas, has been working with the Bleeding Disorder families and youth/camp programs across the west coast for 15 years now, as well as assisting the community for over 24 years as a whole. He has attended/facilitated 100+ camp/family programs in the last 15 years in AZ, CA, NV, WA, OR. He has participated in all formats of programming from youth leadership, family camp, to kid’s camps and even adventure camps. He has served as volunteer, facilitator, councilor and youth programs coordinator, Activities Director, and Camp Director in many programs across the west. Ziggy was also part of the Ca. Leg., Leadership Youth Training in Sacramento for 5 years w/ Mr. Bias, and is again currently a big part of our Future Leaders Team. He has also served on foundation boards and associate boards in the west coast. He has assisted with facilitation of National conference youth programs at NOW and HFA conferences, and been a member of the NACCHO planning committee/speaker for 12 years. He is dedicated to the MISSION, education and success of the foundations and their support programs, and has continually attended and offered support in any way possible to this region as well as many others across the west and the nation.

Michelle Gilmore, Vice Chair
Edmund Merino, Treasurer

Voting Members

Paul Clement
Raeann Fea
Shelley Flores
Josh Garman
Sean Hubbert
Cathy Marquez
Ben Martin
Tony Maynard
Renatto Medranda
Sean Pentz
Elaine Rock

HCC Member Chapters

Hemophilia Foundation of Northern California
Central California Hemophilia Foundation
Hemophilia Foundation of Southern California
Hemophilia Association of San Diego County

Contact Us


(916) 572-7771

Hotline – For Anonymous Assistance with Treatment, Insurance or Access Concerns

(626) 872-5663