Job Announcement: Executive Director

The Organization

The Hemophilia Council of California (HCC) was formed 1979 and incorporated in 1989 as a 501(c)(3) nonprofit organization to provide education, information, psychosocial services, and advocacy to people with hemophilia throughout the State of California. It is the mission of HCC is to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with our founding organizations.

Position Summary

The Executive Director Hemophilia Council of California is responsible for the achievement of HCC’s mission through the financially sustainable implementation of the organization’s strategic goals and objectives. The Executive Director reports to the Board of Directors. This is a full-time, exempt position based out of the Sacramento office.

Key Leadership Competencies

  • Aligned with HCC’s mission, vision, and values
  • Drives the achievement of HCC’s strategic goals and objectives
  • Accelerates fund development efforts
  • Cultivates collaboration and teamwork
  • Promotes community focus
  • Champions Measurement, Analysis, and Knowledge Management



In conjunction with the Board of Directors:

  • Lead HCC in a manner that guides the organization toward mission achievement.
  • Plan and execute HCC’s state-wide advocacy agenda with HCC’s lobbyist.
  • Develop program, organizational, and financial sustainability plans in support of strategic goals.
  • Ensure that adequate funds are available to carry out HCC’s work through fund development activities including grants, contracts, individual giving, earned revenue, and events.
  • Develop programs that are aligned with HCC’s mission and goals.


In conjunction with the Board of Directors:

  • Represent HCC at the policy level in collaboration with the Board Chair, committee chairs, and lobbyist.
  • Establish and maintain collaborative working relationships with HCC stakeholder groups, including founding organizations, advocacy groups, service providers, the National Hemophilia Foundation, and other organizations in the bleeding disorder community.
  • Coordinate HCC’s direct interaction with elected and government officials in collaboration with HCC’s experienced lobbyist as part the organization’s policy agenda.
  • Promote HCC’s advocacy goals, programs and services to agencies, organizations, partners and the general public.
  • Maintain knowledge of significant developments and trends in the bleeding disorder


  • Effectively communicate with the Board by providing timely, complete, and accurate information necessary for the Board to function properly and to make informed decisions.
  • Work with the Board Chair and Committee Chairs to facilitate Board member engagement in HCC’s governance, goals, objectives, and activities.


  • Ensure HCC’s fiscal integrity and financial sustainability.
  • Work with the Finance and Fundraising Committee and the Board to prepare HCC’s annual budget.
  • Provide fiscal management that generally anticipates operating within the approved budget, ensures maximum resource utilization, and maintains HCC’s positive financial position and financial reserve.
  • Maintain official records and documents, and ensure compliance with federal, state and local regulations.
  • Ensure the effective administration of HCC’s operations, including the hiring and retention of competent, qualified staff.
  • Promote active and broad participation by volunteers in all areas of the organization’s work.
  • Encourage Board, staff, and volunteer professional development and education.
  • Jointly, with the president and secretary of the board of directors, conduct HCC’s official correspondence, and jointly, with designated officers, execute legal


  • At minimum three to five years in nonprofit health or education environment in executive leadership or senior management position including program operations and financial management.
  • At least a bachelor’s degree in a related field required.
  • Exceptionally strong internal communicator, with strategic thinking, analytical skills and attention to detail.
  • Ability to present and persuasively convey the mission of HCC to diverse groups including donors, prospects, corporate executives, board members and others who are important to the organization’s mission impact.
  • Willingness to travel and be available for work in the evenings or weekends related to events or site visits.

HCC offers a competitive compensation package, commensurate with experience. Offer of employment is contingent upon successful background check.

Qualified candidates are encouraged to apply immediately. Submissions will be accepted until position is filled. To Apply:  Email in a single submission: one-page letter of interest, resume, and 3 professional references, salary history and requirements to: No telephone inquiries calls or fax submissions, please.

Hemophilia Council of California is an equal opportunity employer that does not discriminate based on religion, race, color, national origin, ethnicity, age, gender, physical or mental disability, sexual orientation, gender identity, marital or family status, or any other basis prohibited by law.

2016 California Coastal Ride For Hemophilia

2014 california coastal ride riders

2016 marks the 15th year of the California Coastal Ride for hemophilia and other bleeding disorders. The CaliforniaCoastal Ride for Hemophilia is a fitness challenge benefiting all four California Hemophilia Chapters & the Hemophilia Council of California. Cycle over 500 miles from San Francisco to San Diego in one week for hemophilia, von Willebrand Disease and other bleeding disorders!

The ride begins with a kick-off dinner on Saturday, August 13 in San Francisco and concludes on Saturday, August 20 in San Diego. Registered riders embark on a seven-day journey along California’s majestic Highway 1 for an experience like no other. From the rugged mountains of the north to the bustling beach cities of the south, you will see it all!This ride is truly a coastal ride adventure where you will test your ability and challenge yourself each day. You will ride through the coastal towns of Santa Cruz, Big Sur, Monterey, San Simeon, Pismo Beach, Santa Barbara, and Dana Point.

The Hemophilia Council of California (HCC) is a collaboration of the four hemophilia chapters serving California. HCC’s mission is to support the four California hemophilia chapters and improve the quality of life of people with bleeding disorders. HCC coordinates the advocacy concerns of chapters and individuals with bleeding disorders, runs leadership programs and organizes the annual legislative day to give a voice in the state Capitol.



Blood Roots

The Hemophilia Council of California’s (HCC) partnership with the CDC Region IX/HRSA Western States Regional Hemophilia Network has been an essential component of our state level patient advocacy efforts. The strength of the HCC’s position on access to established, quality, state-of-the-art treatment and care for rare bleeding disorders within the HTC network is recognized by numerous departments and policymakers in Sacramento.

We are pleased to showcase the ‘Blood Roots’ documentary video on our website, to enhance the bleeding disorder community’s awareness and appreciation of the history behind this expert network of comprehensive health care services that have defined a higher level quality of life for decades. The value and opportunity for patients to collaborate with dedicated health care professionals throughout a lifetime is beyond measure. The HCC understands the emergence of the 340B program as an expanded source of funding for the HTC network, after initial grant funds were no longer sustainable. In addition, patient choice in sourcing their factor products within the parameters of their health care plan coverage is an inherent right and responsibility the HCC strongly supports.