History & Mission
The four California hemophilia organizations formed the Hemophilia Council of California (HCC) in the 1970’s, and in 1989, we incorporated as a 501(c)3 nonprofit organization, to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders in California.
Twenty-seven years later, HCC continues to pursue its mission to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with our founding organizations.
Tax ID # 68-0182998
The HCC Team
Robyn Ireland recently rejoined the Hemophilia Council of California as Executive Director, having worked as Program Director for HCC under Val bias from 2004 – 2010. She has a background in marketing, event management, nonprofit administration, and program development for small organizations with statewide, national, and international reach. While not directly affected by a bleeding disorder, she have a passion for small organizations with passionate communities and huge impact. That certainly describes HCC! She feels that in today’s healthcare climate, HCC’s role in advocating for high quality care, choice of product, and healthcare access is more important than ever and looks forward to the addressing the coming challenges collaboratively with community members and stakeholders to improve access to care and outcomes for the bleeding disorders community.
Heidi Scanlan, Executive Administrator
Heidi has Von Willebrand Disease, as does her oldest daughter, mother and grandmother. Because of this, she is very passionate about spreading awareness of the disease. She home schooled seven children, which has taught her how to be a great advocate. For the last thirty years, she has been running her bookkeeping and tax business. She came onto the Council in 2010, perfecting her advocacy skills.
Randall Curtis, Interim President
Randy has a bachelor of science in genetics and an MBA in computer information systems. Throughout his 33 year career with the State of California in Public Health and Industrial Relations, he as always worked on data collection systems for hemophilia in his spare time. Now that he is retired, he is working in the following capacities: Past President, Hemophilia Council of California – statewide advocacy for bleeding disorders, Hemophilia Utilization Group Studies (HUGS) – burden of illness studies in bleeding disorders, Patient Reported Outcomes, Burdens and Experiences (PROBE) – data collection and hemophilia advocacy training for developing countries, American Thrombosis & Hemostasis Network: Privacy, Security and Data Access Committee, National Hemophilia Foundation: Annual Meeting Planning Committee, Center for Inherited Bleeding Disorders: Board of Directors, National Panel on Practice Guidelines for Hemophilia Management, National Hemophilia Program Coordinating Center (NHPCC) Advisory Committee, Pacific Sickle Cell Regional Collaborative Policy Working Group.
Donald Douglas, Secretary
Ziggy, aka. Donald, has been working with the Bleeding Disorder families and youth/camp programs across the west coast for 15 years now, as well as assisting the community for over 24 years as a whole. He has attended/facilitated 100+ camp/family programs in the last 15 years in AZ, CA, NV, WA, OR. He has participated in all formats of programming from youth leadership, family camp, to kid’s camps and even adventure camps. He has served as volunteer, facilitator, councilor and youth programs coordinator, Activities Director, and Camp Director in many programs across the west. Ziggy was also part of the Ca. Leg., Leadership Youth Training in Sacramento for 5 years w/ Mr. Bias, and is again currently a big part of our Future Leaders Team. He has also served on foundation boards and associate boards in the west coast. He has assisted with facilitation of National conference youth programs at NOW and HFA conferences, and been a member of the NACCHO planning committee/speaker for 12 years. He is dedicated to the MISSION, education and success of the foundations and their support programs, and has continually attended and offered support in any way possible to this region as well as many others across the west and the nation.
Michael has 25+ years of experience at multiple levels in the biopharmaceutical industry with extensive strategic and tactical experience in launching products for rare, chronic diseases. He also has 12+ years working as a clinical laboratory scientist with a primary focus on hematologic disorders. Michael spent over 24 years at Baxter/Baxalta/Shire. In his most recent role he was Vice President of US Market Readiness.The role of Market Readiness centers on incorporating market access and pricing strategies/tactics into current and future marketing and launch execution plans. He has dedicated his career to making sure that companies continue to be the leader in patient focused access to rare, innovative therapies. He strives to make access an integral part of all business planning and to advance and coordinate strategies that have a positive impact on patients and customers. Michael has been involved in more that 15 new and life-cycle product launches in the areas of hematology, immunology, biosurgery and COPD. Michael has now transitioned to a consulting role at The Access Group. In his current role Michael works with organizations to create focused strategic and tactical plans in the areas of market access, managed markets, reimbursement, HEOR, advocacy, public policy, pricing and value propositions. The overall goal is to facilitate the coordination of products, programs and resources to enhance patient access. Additional areas of expertise include managed markets, reimbursement, HEOR, advocacy, public policy, pricing and product value propositions. Michael is a licensed Clinical Laboratory Scientist and has an MBA in Marketing Management.
Raeann has been heavily involved with the bleeding disorder community since she was diagnosed with Von Willebrands in 2008. She attended camp for the first time just months after being diagnosed, and became a camp counselor and mentor with the Hemophilia Association of San Diego County shortly thereafter. After her first year of attending, she knew the Hemophilia community would quickly become her second family. She started her work with the council through attending the Future Leaders program, immediately fell in love with what the council stood for, and wanted to become more involved. When Raeann reached the age cap last year, she knew she wanted to do more and joining the board as a member was her next step. In the coming years, Raeann looks forward to working side by side with all of the committee members, and having a positive impact on individuals and families affected by bleeding disorders.
David is a severe hemophilia type A patient currently studying breast cancer at UC Davis Medical Center. His goal is to live life to the fullest and show every hemo brother and sister that there is no limit to what they can do. He enjoys speaking to everyone about hemophilia and what can be done, now and in the future, to make lives better. When he is not in the lab or talking to people, he enjoys working on and riding his motorcycle, snowboarding, and generally pushing the boundaries of his physical and mental limits.
Bobby is a Bay Native that was born and raised and San Francisco. Since an early age he has been active with the Hemophilia Foundation of Northern California in a variety of capacities. In the 1990’s he served on the Board of Directors for HFNC as well as the Chair, Summer Camp Planning, a position which he currently holds. He is also the Camp Director the HFNC servicing children and youth from both Northern and Central California. With HFNC he has served as the Outreach Coordinator for the African American community, Chair of Youth Activities and a number of other positions within the Foundation.
Cathy Marquez Velasco
Originally from Michigan, Adam and his wife Catalina moved to San Francisco in 2015. He works as an HR Business Partner in the technology industry, and holds a Masters Degrees in Counseling and Human Resources and Labor Relations from Michigan State University, and an undergraduate degree in English, Psychology and Secondary Education from the University of Michigan. In their free time, Adam and Catalina enjoying exploring San Francisco and traveling.
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